FOD Family Support Group
Support Group - Fatty Oxidation Disorder
FOD Family Support Group (Fatty Oxidation Disorders)
PO Box 54, Okemos, MI, 48805-0054
Distance: 175 Miles
Group of people that meet on a regular basis to share their experiences and provide mutual support
Provides support to families coping with rare metabolic deficiencies
This organization publishes two newsletters each year; maintains a family list so families can network by phone, letters, or e-mail; refers to professionals; and advocates for newborn screening for Fatty Oxidation Disorders (FOD)s on a national basis, and has a conference every two years.
The online 'Communication Network' is intended to be used as a worldwide resource for families, friends, clinicians, researchers and others who would like to support, educate and provide a forum for the sharing of ideas and concerns for those whose lives have been touched by a Fatty Oxidation Disorder.
Families and interested professionals coping with any fatty oxidation disorder - for a list of types of disorders included, visit: https://fodsupport.org/description
8:00am - 8:00pm, Daily (Eastern Time)
This provider does not offer this service at other locations.
Other Services or resources
This provider does not offer other services or resources at this location.
Taxonomy Terms Used: Clicking a taxonomy term from the list below launches a new search.
PH-1400.6500-650Parent to Parent Networking Definition
Programs that link parents whose children have a specific disease, disorder, disability or other issues with other parents whose children have similar challenges for the purpose of information sharing and support. Also included are programs for parents who themselves have a disability or other problems that have an impact on their parenting ability.
PN-8100.3000Health/Disability Related Support Groups Definition
Mutual support groups whose members are people who have specific disabilities, illnesses or other health conditions, their families and friends. The groups meet in-person, by telephone or via the Internet; and provide an opportunity for participants to share information, resources, practical tips for daily living and encouragement about issues related to the disability or health problem.
TJ-3000.8000Specialized Information and Referral Definition
Programs that maintain information about community resources that are appropriate for a specific target group or human services sector (for example, youth programs or addiction services) and which link individuals who are in need of specialized services with appropriate resources and/or which provide information about community agencies and organizations that offer specialized services.
YB-9000Young Adults Definition
Individuals who are generally between the ages of 18 and 25 depending on the ages that specific programs use for qualification.
YF-3000.2130Congenital Conditions/Anomalies Definition
Any of a wide variety of anomalies that are present at birth as opposed to acquired at some point later in life.